Participant Information

If you would like to know more about this project or if you wish to participate in this project, please download an Expression of Interest Form.

This form provides additional information, and invites you to register your interest to participate by filling out the form and sending it to us. If after informed consent you choose to participate, you will be asked to answer some questions regarding your relevant clinical history and family history, and to supply a small quantity of blood (or saliva).

Your DNA will be extracted from the blood or saliva, and will be stored by us until we genetically analyse it.

We organise this for you and there is no cost to you.

All information you supply is kept strictly confidential, and we will destroy your DNA and your records at your written request if you choose to withdraw your participation at any time.

If we identify the genetic mutation that has caused your IRD we will offer to report that result to you via your nominated ophthalmologist or genetic counselling service.

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